Tuesday, September 29, 2015
Card, copy, Pastry and puzzles
Ruth made a special card for Rachel when we went to pick her up after her Regional Competition weekend.
They had a very successful weekend. Their team got a 3rd in Communication, a 2nd in Pair test (Rachel's pair) and a 1st in a Team First Aid test.
This was the first 1st place that Amberley has ever gotten at the Regional Competitions - so they were all very excited.
Well done Rachel.
I made it today so that it would have a good week to dry. I was happy with how this stage worked out.
I had a smile this evening as Ruth went to join Asher lying down and watching Wiggles. Ruth decided to copy everything Asher did (Asher didn't seem to even notice).
Oh - and the jeans Ruth is wearing (which she really liked) have finally split so badly that she has finally thrown them out. ;-)
So I got some rice based gluten free flour and had a go at making sausage rolls. They were very successful and so Rachel offered to make some more.
They really were delicious.
Unfortunately I realized very quickly that I get headaches from rice - so I didn't get to enjoy them as much as the others. Over time we saw some issues with others in the family that seemed to be related to the rice - so it hasn't become a very regular at this stage.
Tuesday 29th: Asher has been working on her threading skills. It's been so much fun to watch her figure it out. She loves sitting and threading shapes onto shoelaces. The holes on the shapes are really small (just the eyes on these animal ones) so she is doing really well with it.
After a great 9 day gap, she had a seizure this morning at 11:15. A 2 min Vacant. She went very blue and stayed very pale afterwards. I called a couple of neighbours to try local the oxygen (we have a few first responders around us).
I am again so very thankful for the people we have around us who are always willing to help when things just feel a bit too scary or emotional.
I thought she had pushed it a bit too far this afternoon with the amount of puzzles she unpacked, but she managed fine. ;-)
At 6:15 she had a 17 minute Vacant seizure with Clonic Tonic movements on her face (eyes flickering and eventually her mouth too). Brendon and I sang a few songs to her at times through it, and there were a few times that she squeezed my hand while we sang. So it motivates me to sing to her more often.
Note: On Wednesday 30th at midday, while at the table for lunch, she had a 2 minute "episode" where she was semi-conscious. She went to Ruth and Ruth called me and said "she looks sad". I came over and realized something was up. She couldn't talk to us and we could see in her eyes that something was wrong. Thankfully it didn't last long and then I got a "hi" and request for milk. :-)
Labels: Asher's epilepsy, FAILSAFE, Meals and Food, Puzzles, These make me smile
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