She has changed from watching Diego to Dora lately. As she had her own way of saying "Diego" (the start of the work - "Dee-ai") she had been calling Dora "Dee-ai". So we have been trying to teach her to say Dora but she would say "Dee-ai Ra" instead. Today I emphasised the "D-aw" at the beginning. We had a game of it and every time she said "D-aw Ra" she got a tickle. She just loved it. Even though there is still a pause between the sounds - she is getting it right. It's amazing to see the concentration on her face as she does it. Wonderful to see her managing though.
While I was out taking the older girls to St John, Asher had a 7 minute Tonic Clonic seizure. Brendon was busy making Hezekiah some food, so Hannah was watching her in the lounge.
It was the first seizure that Hannah has been alone with her. Hannah did really well, stayed nice and clam and called clearly "Asher is having a seizure". Brendon had head a thump (Asher falling) and then immediately heard Hannah's call. So she did really well. Unfortunately Asher went a little bit blue around her mouth. She also had what seemed like terrible stomach pain when it stopped. Lately she has often had shaking after the seizure stops (like shivering) and Brendon said it was really bad this time and he struggled to get her to relax. Poor little girl.
Wednesday 27th: Back to Champion Centre now that it's school term again. Asher does love these matching coasters.
Thursday 28th: This was most definitely a photo opportunity. Seeing Hannah choosing to read first thing in the morning. It's not a compulsory school book, but rather one she got out of the library. Unfortunately it ended up being a bit too long for her. I'm so pleased she tried though. :-)
School term means ballet is back on. Ruth is the only one from her class doing the exam. When it comes to their dances, Ruth does it on her own with the rest watching and giving input, and then they all dance it together.
The practice exam is on Saturday 20th August and exam date is Tuesday 30th August - so just a month to go now.
Rachel was back at ballet today. She had an ankle guard on and didn't do any "loading" of the ankle. So she didn't put any weight on it if it wasn't in a normal standing position. So she really just "marked" a lot of the exercises as she was not able to do them properly (so she walked through them and focused on her head and arms).

I chatted to the physio on Monday about the scan results. She confirmed what the radiologist told us - that there are no tears in the tendons or ligaments. The physio explained that the dark area we saw in the middle of her joint is inflammation. So although no swelling is showing on the outside (and never has), it is still inflamed in the centre of the joint.
Friday 29th: Ruth has been trying to earn some extra money this week and finally got the hoped for money from Rachel who paid for some massage. We all had a good laugh as the reason she wanted the money was to hire this DVD from the library - FOR Rachel. It was a "gift" to her (which they all then got to enjoy).
Saturday 30th: Yes, it was a picture worthy moment - with Brendon and I going out for the afternoon - ON OUR OWN!!! A friend has organised a book club of sorts, and we enjoyed a lovely afternoon fellow-shipping and discussing the book we are reading.
Ruth's creative juices were flowing while we were out and they created these lovely animal faces.
We also had a neighbour come over to watch Asher (using some of the carer support hours that I have available). It was nice that Rachel and Ruth didn't have full responsibility of watching Asher and could get other things done. It's a nice way of introducing her to watching Asher and all that is involved with that - but still having the "backup" of our girls there to help with any seizures or just with daily communication challenges that come up.
Sunday 31st: We dropped Rachel off in Amberley on our way home from church so that she could get some St John competition practice done.
And enjoy some "parent-child" time together.
It looks like we will be breaking our pattern for a while. We used to alternate between Brendon and I with the older 4 children (and it was due to be Hezekiah and I next), but as there was some heavy furniture to be picked up on the way home, Brendon was the logical choice. There was no way I could do it. I also get to regularly spend time with Rachel travelling to different things (like ballet and the orthodontist) so Rachel and I might not be included in the schedule for a while.
A first for me was cooking salmon this evening. None of us have ever had salmon this way (only ever had thinly sliced pre-smoked salmon - or in sushi).
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