Sunday, December 24, 2017
The week before Christmas
Hannah wanted to come with and so we ended up making it an outing for us too. We did some Christmas gift shopping and had a fun time together.
Friday 22nd: Such a special photo with these three.
Rachel is working a lot more on the farm during the holiday, doing cleaning. When she was offered the job we had a chat about how I would cope at home. The arrangement was made that Rachel would pay Ruth a percentage of her wage and then Ruth would be employed to help with Asher. This week has gone really well and it has made the holiday a lot easier for me.
It's a hard job watching Asher, but the financial reward helps Ruth to have the patience and energy to keep going. She also does Rachel's dishes when she is out and makes bread too when needed.
Rachel is also thrilled with the opportunity as she has been wanting to get a decent phone for a while now. The extra work makes it possible for her to get a really nice one.
Asher had a seizure at 4:30 this afternoon. Unfortunately this was a start of a cluster for her over the next couple of days. On Saturday she had 2 at 3:30pm and 7pm. She started her pacing at 6pm - so we were not surprised by the 2nd one. On Sunday she had 2 again, at 7:30am and at 1pm. She was pacing early this morning too. Thankfully they were all short (just 1 min each) and she then had a good break for a couple of days.
Saturday 23rd: Brendon doing a great job of getting an unsettled Anastasia to sleep - and enjoying a nap himself too.
As Brendon and Rachel will be working on Sunday morning and then we will be out, we said we would open presents on Christmas Eve. So as expected, they asked if they could open one present each today (the eve of Christmas eve).
Ruth loves being the present distributor.
Hezekiah was thrilled with his sword and pirate accessories. Hannah also got a sword and we thought they would have at least something fun to do today with the new presents. Unfortunately Hezekiah's sword broke within an hour of play, so that had to be fixed and he was allowed another present for today.
Ruth first wanted to read a Christmas book. The birth of Jesus in a rhyme book.
So pleased with his new little tiger.
Asher wasn't really interested in it all - as we expected. She had slept after her last seizure and the pacing thankfully stopped. Perhaps just extra tired from 5 seizures in 3 days.
He got a few to unwrap for himself too.
A fun gooey photo.