Sunday, August 6, 2017
She said it won't be watched in her house. :-) The others all thought it was loads of fun though.
Hezekiah has been asking Dad to do some "practice" with him, so they headed out for some fun this afternoon.
Such scruffy hair as she often pulls her elastic out.
It was sweet to see Anakin happy to have a bit of a cuddle with her today.
We went to church in two cars today so that I could head off to fetch Rachel after the service. I quickly joined in when this photo was taken of some of the girls from their division in the Competitions.
Not loads of medals for Rachel this year - but she had a great time. And that's what counts. She is really looking forward to having her restricted license next year as that will mean she can get to all the practices for Competitions. Which will be a great help.
Just as we arrived home Asher was having another seizure. 1 1/2 min TC with a minute of violent jerking afterwards. So a rough day for her. And a rough start to the month. That's 5 seizures in the first 6 days.
Friday, August 4, 2017
Tue 1st Aug: Great to be back at Champion Centre after missing 3 weeks (holidays and then being sick). She had a new drum song today and it was great to see her enjoying the drums so much. Not the best photo - but a wonderful time playing.
Wed 2nd: Children photo gotten this morning. Tuesdays and Thursdays are always impossible in the mornings, so I was glad I remembered today.
When they came to pick her up this morning her new "mum" just fell in love with her so quickly. I loved hearing Rachel describe the ladies reaction to the children when they got home from school. It made us all feel so much better knowing that Little Miss is going to be loved (and spoilt). She even had a sheep's skin in the basket for her trip to her new home. I heard later that she was already purring as soon as they got home. This couple had to put their old cat down a couple of months ago, so Little Miss is going to fill that gap wonderfully. And I think she is going to enjoy the quieter home - with just 2 people and no other cats.
It was great to have Asher's EIE come and spend the morning with her at home. It helps her to get to know Asher a bit. Hopefully it won't be too long before the paperwork is all sorted and Asher is back at preschool.
Thursday 3rd: Asher had a 1 min TC at 9am this morning. I had taken her into the class room at school to try and get her familiar with the room (and more comfortable there). The kids had Jump Jam this morning, so I thought it would be nice for her to follow along with the children. If this is something she is a bit more familiar with (going where other children go - not off on her own) it will help for when she starts school.
When I picked the children up from school we had our first ever "finger in a car door" incident. I got such a fright and was rather scared about what I would see when I got around the car to Hezekiah. I was so relieved when the finger tips where still on. Just broken skin (not too much bleeding) and a lot of pain. He got such a fright that he bit his lip. We sorted the fingers out when we got home, and he put ice on them, but it was only later we realized how badly his lip had been hurt. I had seen a tiny bit of blood, so guessed he must have bit his lip, but was shocked with how much it swelled.
Getting much needed ice on that lip as well as the fingers. Both the older girls were helpful in guiding me through wrapping the fingers. I was nervous about a plaster - worrying that they may swell (and then the plaster is too tight). Thankfully I found some dressing plaster that I could cut and use and it worked really well. Ruth gave me the extremely helpful instructions on how to wet the middle section so that it didn't stick to the cuts. I didn't do that on the first dressing, and we had to wet them to loosen the stuck dressing. So Ruth helped sort that out and the 2nd dressings worked really well.
Friday 4th: I took Asher with to assembly today. I'm hoping that by being around the children more she will get more familiar with the environment. I had her bag of toys with (church toys) to keep her busy in her buggy (and hopefully quiet). I was really thankful for how well she did. Next time I must just sit in a better place so she can see better. She often looked up and listened to the people who were talking (even if she carried on with her puzzles through it). And she loved clapping with everyone else. So it went so much better than I expected. She was pleased to see Hannah at the front - reading about their landform creation.
And she got to clap for Ruth too - who got a certificate today. For her positive participation in class and school wide activities! Well done Ruth.
I didn't get a photo - but Ruth has had her first hair cut. With us re-doing her braids, the new ones are much shorter than the old. So she finally asked me to just trim them all. It was good to get her used to having her hair a bit shorter. Once we are finished re-doing all the braids it will be a bit shorter still. So it was good to get the adjustment started. And it really is blog worthy - her first hair cut in 11 years!!! Just a pity I didn't get a photo on the night we did it.
In this photo she has some "corn rows" or small "French braids" along the top (I did 6). It made a nice style for a few days - but this photo doesn't do it justice (it looks a bit messy in the photo - but it actually looked lovely and neat). We keep working on re-doing braids. Currently we try do 3 braids in the evening (rather than 6 to 8 on a Sunday afternoon). Ruth has also started undoing some herself - so some nights we get to do 4. It takes a full hour though, so she is very patient with it all. The end is in site though. I'm hoping we will have it all done by the end of September.
Sunday, July 30, 2017
|Hannah's landform creation that she made with Grace.|
Brendon had headed off to work and although Rachel tried her best, Asher just refused to eat. So I got up to feed her. As I was up I took the kids to school, but by the time I got back home I felt even worse. Thankfully I only vomited once, but I had to ask Brendon to come home so that I could just rest (and Asher could get fed).
|Ruth's landform creation that she made with Jess.|
We have found a new EIE for Asher, but are waiting for Police Clearance to be done before she can start at the preschool with her. On Wednesday morning however, she came to our home to play with Asher and get to know her. So that allowed me to have time to chat to my midwife which was really great.
There is one boy in their class (year 7) who is so gifted with Math that he is already working with the year 11 children. So it was a great afternoon for Ruth and I and I learnt a lot about how she is doing.
Unfortunately I had turned the volume off on my phone but left it in my jacket (which I had taken off) and so I didn't feel it vibrate when Rachel phone. Asher had a seizure while I was out. It was one of those horrible times when she has pain afterwards and it was very emotional for Rachel. She said it was so hard not being able to help her feel better. And then she had Hannah and Hezekiah pestering her for things at the same time. As well as her not feeling great (she got the tummy bug last night - so today was a recovery day for her and she missed dancing). So she had a really stressful experience. I felt so sorry for her having to go through that. It must have been a very real learning experience for her though, to get a glimpse of the complexity of the stress that I am often under.
On Wednesday evening I asked Brendon to call Asher's dietician. I was feeling too emotional about it all (so knew I wouldn't cope with a phone call) - but was also facing the facts that we may need to stop with the diet. When Brendon described what was happening with Asher's meals (needing either of us to feed her - every time), she was the one that said we need to stop. So it was reassuring to me to know that I wasn't over-reacting. It really is not practical to continue.
I took this photo on Saturday morning. An old Keto recipe with most of the fat left off. It was so good to have her asking for food and happily sitting at the table and feeding herself. The change has made me realize how very hard it's been over the last couple of months. If I think back to before the tummy bug in April, the diet was going so well. She loved all the food and happily ate everything (especially loving her frankfurters, olives and butter). Things just didn't come right after the tummy bug and then throat infection a couple of weeks after that. So we have to just be realistic with what has happened. We can't change it - and we have done the best we can.
I got the cooking started and then they asked me to flip the pancakes. Which I then did. This was enough to get Daniel wanting to give it a try. So after giving some tips, I could leave the cooking up to him.
Monday, July 24, 2017
I had invested in a bigger rolling mat (and rolling pin) and I am so pleased with it. This was my first every cake to get covered with fondant and have NO creases. It's not that easy to get the sides of a round cake to sit flat without folds. I think what really helped was that with the lines on the mat I could get the size almost exactly right. I was also able to pick the whole piece up (on the mat) and place it right in the centre (the mat is slightly see-through).
Ruth and I had made this unicorn earlier in the week, so it was dry enough to paint today. I had bought some gold edible powder paint. It worked really well.
Ruth was pleased with the outcome.
Oops - eyes closed for the photo. :-)
Brendon then had the hard job of cutting it up to feed almost 30 people. Well done Brendon.
Sunday, July 23, 2017
Rachel had a St John meeting this evening but it worked out well that an old ballet friend's mum was able to pick her up after the meeting and she got to spend the night and Wednesday with them.
These two had a picnic with their teddies this morning. I love it when they come up with games that they both enjoy. They have so much fun together.
The plan was for Brendon to head out with Ruth this evening. Rachel needed to be picked up from her friend, so it was a good excuse to go out for a sweet treat. I have had a tiring time lately though with Asher home for 4 weeks (no preschool) and then two weeks of holidays with all the kids home, so Brendon suggested I rather go with her. I was very grateful to get the 2 hours out the house and enjoy some quiet. The weather hasn't been wonderful these holidays, so the inside volume has been one of the hardest things to cope with. So this was a wonderful break from it all.
Friday 21st: Asher had another 1 min TC this morning at 9:45am. Josie had thankfully not left home yet (she normally helps me with Asher on Friday mornings) and so I could tell her not to worry about coming out. Especially with all the rain we had today.
The rain arrived as expected and the ditches outside our home were full. I forgot to take photos, so I share one taken by our talented neighbour Val Simpson.
Other than some pooling in our garden, it wasn't really a problem (just a lot of rain). There was a lot of flooding in South Canterbury which caused a lot of damage. So we were grateful it wasn't too bad for us.