Wednesday, March 8, 2017
Sprinkler, stunts, triathlon and tummy
Sunday 5th: Asher had a 1 minute Tonic Clonic during church this morning (at 11:15). She went very blue, so we were glad it was again a really short one.
And then this evening it was time for a Girl Guiding challenge again. She was the leader who could not use her hands, and we were her team, who could not see. So with us all "blind" she had to direct us to build a "shelter" out of some cloth, toothpicks and mini marshmallows.
Below: She had a great time playing with a ball and the frogs while I got to chat to her OT (and the team leader) about some of the questions I have about "school".
And then group music went so very well. I was amazed at how well she sat through the two very new songs. Hilary (the computer teacher) was there to take a video of them, so I could play that at home for Asher. It looks however, like we may not need it. She sat and looked around and listened. Not at all intimidated as she normally is. I really do wonder if sleeping through the songs last week really helped her to get to know them - even if that was subconsciously.
Then we did our monthly special library stop. And then it was to the hospital for a check-up with her neurologist. So a very busy day in town for us. It all went well though - especially the doctor's visit. I had her church bag of toys with and she just happily sat in the middle of the room and played as we talked.
It was a very wet day and I always feel bad about the children having to ride to school in the rain. Thankfully it wasn't raining too much when they left. It also helps that Hezekiah can ride now too, so Rachel doesn't have to walk up with him.
Wednesday 8th: A new meal for Asher today. I have started including kiwi crush into her diet as she never really likes having a huge bowl of berries for desert. The kiwis have a much higher carb value - so she doesn't have to eat as much - which she likes.
The cucumber has shown to be too much for her too. She would happily eat more of the fatty things, and just not bother with the carbs. We have to keep things exact though, so I'm working on making it all as palatable for her as possible (which for her means making the carb content as compact as possible). So this has worked well. And it's also great for her tummy. Many children on this diet are on laxatives on a DAILY basis. Asher has only had to have twice. And the 2nd time only half a dose. So I'm very thankful for this too.