Today Asher gets a 2:1 ratio which means there are two parts fat to 1 part Protein and Carb. It has it listed as 82% fat. She had her "breakfast" shake while kicking ball with me. Using the syringe last night with the last feed was such a breakthrough - it makes feeding quicker as I can give her more than what she would just sip from the cup. So it only took 45 minutes for breakfast today. I was pleased with the improvement.
We were in and out of the playroom through the morning, so I will let you enjoy those photos while I update on what happened today.
Her morning feed was already so much better and only took 30 minutes.
Then Toby (her nurse) and I decided to get the ECG done (they want it as a good base record). Toby has gotten to know Asher well since Sunday and it went so well.
Lunch was again just 30 minutes with the syringe. Once I had eaten lunch, we headed off to the Botanical gardens. We spotted a lady feeding the ducks with her baby, so Asher got to get nice and close. The lady gave me some bread too - so that was fun.
The playground isn't close to the entrance we came through, but it was a lovely walk and Asher was happy looking at the flowers and trees.
The first slide was rather hot (and I was getting hot in the sun) so I was pleased she didn't stay there long. There is a big water area (with very shallow pools) and Asher kept asking to go to the water. I have no gear with for that though, and thankfully she found other things to keep her busy (like the orange slide which was in the shade).
For her afternoon tea I offered her the cup (as I normally do at the start) and this time she took it. She drank half the meal before I had to use the syringe. So it was again nice and quick and just 30 minutes.
So the photo has a dual purpose - to celebrate the milk mustache (from drinking it herself) as well as showing the turtle that she build - outside it's frame. I encouraged her to do the same with the lion, but she searched for it's frame and then started. So not quite ready for them all, but it was nice to see.
The activity room closes at 4, so we headed down there for almost an hour. I found a tennis ball with the velcro circle to catch it on, and Asher spent ages throwing it to me (and racing the cards after each throw).
Asher was also very loud as she made a bit noise with every throw. It was one of her intense times where she is so intense with the game and the verbal intensity accompanies it.
Rachel (play room specialist) asked if Asher liked the Frozen music, and I said, no she just has 1 album she loves. Rachel was ken to try and find it and searched on Spotify and put 10,000 Reasons on her Asher. It was so cute to watch her fact when it came on.
After mixing her drink for dinner, I just offered her the bottle I mix it in. She happily took it and just drank. She had a break half way, and then just kept going. It was done in just 10 minutes!!! Her neurologist and dietitian are going to be so pleased tomorrow. This really was a wonderful answer to prayer.
Please pray with us that she manages as well tomorrow with the higher ratio.
I was hoping it would go as well as the previous, so started it a bit after 7 (original plan was feed from 7 till 7:30) but she was so quick that she didn't even take a break and finished it all in 5 minutes.
Please pray with us for wisdom for all involved in decisions tomorrow, and also that her body would start producing good amounts of ketones.