Sunday, October 16, 2016
50 km cycle and 5 seizure cluster
Arrival time was 9:30 and then they had some safety info as well as some activities to do before they left. I decided to hang around to get some photos when they left. I didn't realise they would only head off at 10, but it was worth the wait.
At 6pm Asher had a 1 minute Tonic Clonic. She went really blue around her mouth, so we were thankful that it stopped so quickly. We were also thankful that she didn't have a full hour nap afterwards. She was awake by 6:30 and so ready for bedtime at 7:30.
So we didn't head off to church but just had a quiet morning at home. Brendon did head up to the park with Hezekiah tough and had a great time.
Asher had another 1 minute Tonic Clonic at midday and then again at 5pm, again at 10:30pm and then again at 12:30am. By 5pm she had a fever, so this cluster is most definitely related to her being unwell. 5 seizures in 18 hours. I'm so thankful they were all 1 minute or less.
After her 10:30 one we gave her an extra dose of medication (we had previous doctor's advice to do this in a cluster situation). So when she had the next one after midnight, with the fever even higher, we decided to rather give her some paracetamol to drop it. We always try to leave fevers to do their job, but had to again weigh up the pros and cons. The fever came down a bit and the seizures stopped. That allowed us to get some rest.