Wednesday, May 16, 2018
6 months and drill champs
At 8:45pm Asher had a 1 minute Tonic Clonic. She was really restless for at least 20 minutes afterwards. It's always so hard when she feels so terrible and there is nothing we can do to help her feel better. It's always such a relief when the pain / discomfort settles and she can get to sleep.
Anastasia has started enjoying making some lovely noises. She so enjoyed "talking" to us this evening and it had everyone laughing and having fun with her.
It was tricky to get a good video of it - and we only just got a tiny bit at the start of this one. At the end though, you see her lovely response when I call her. Without fail I will call her and her face will just light up.
Unfortunately Asher had another seizure at 9pm this evening and was again restless for at least 20 minutes. And then at 10:30pm she woke up and was very unhappy. There was a lot of neurological activity (even though not a "normal" seizure) and so we gave her a dose of Midazolam to stop it. Thankfully it worked quickly and she could say "hi" and then get back to sleep.
These photo was on Tuesday - having a rest with Ruth after school. She obviously wanted some extra physical contact today and so Ruth was a great big sister in giving her the cuddles she needed.
She unfortunately had a really bad few nights. This evening it started at Bible Study with her having a bit of an episode.
On Wednesday night her "bad" feeling happened at 8:30 and we again had to give Midazolam to stop it. Her appetite has also been really low this week, so it's been hard to see her struggling.
On a positive note, she is learning quickly and even said "bad" on one of these occasions. Not "feel bad" but just bad, over and over. At least she is telling us accurately how she is feeling.
Wednesday 16th: Hannah headed off on a school camp today. She has been so excited and counting down the days. They will be back on Friday afternoon.
On Wednesdays the teacher aides all have a meeting first thing in the morning, and so I stay with Asher till they are done. It was really great to see her enjoying the kinaesthetic sand (have you felt it before - it's wonderful to play with).
RIGHT: A fun app that Asher has at school. It's a bit like a puzzle for her, but she will slowly learn about letters this way.
There was a planned power out today as they upgraded a lot of power poles around us.
Thankfully we did know about it, so we had made plans for Dad to BBQ when he got home. Rachel and I used the wood burner to heat / cook our lunch. It was not the best day for the work or a BBQ, as it rained solidly the entire day.
Ruth playing with her two little sisters. Quite a few children in Ruth's class will be going to boarding school next year. We have chatted about what some of the advantages and disadvantages would be (just in theory - as the cost makes it not even an option to consider). One huge reason I don't think Ruth would enjoy it is that she would miss these two too much. Ruth is so good with little children and enjoys them so much. She has a special relationship with both of them.
Anastasia has really been enjoying this crocodile that she was given.
More fun with Ruth.
Labels: Anastasia's first year, Asher's epilepsy, Camp, Music, Ruth's Guides, School, St John
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