Tuesday, March 27, 2018
Gifts, a licence and a Grand award
Pastor Steve has said he will plan to do the same thing when it's Ruth's birthday. The only problem is that Hezekiah overheard that - so he wants it for his birthday too. Oh dear - he has started something now. :-)
Time for presents when we got home. This is always a big thing for Ruth - so she helped me choose some presents when we were in town for her orthodontist check-up and she got them all in gift bags. Ruth bought Hannah this oversized glitter filled pen - which Hannah was thrilled with.
Tuesday 20th: Asher had an appointment with her neurologist today. Brendon took the day off so that he could help me (it's tricky with Asher and Anastasia). He was due to get his eyes checked, so we doubled up on appointments. I'm glad we did that too as he does need new glasses.
We had a good catch up with her neurologist and he has suggested we double the dose of her new medication. So I will probably wait till the long Easter weekend so that if she has some tired days she can rest more over the weekend.
She does so love this Thomas model in the waiting room. I have also realized that if she hasn't said hi to the train, she won't cope with going anywhere else.
It was bible study again this week (it's only every 2nd week). The kids so enjoyed the time outside after their dinner. They must make the most of it as it's going to be getting dark and cold soon.
And then we had a really good study. Unfortunately Asher is not falling asleep as she did the first time we came (and put her in a make shift bed at 7:30). Hopefully she will cope with the later bed time.
Ruth has been playing a bit of tennis at school. She found my racket from when I was in primary school. Wow - that racket has done well. It's over 30 years old.
The game this afternoon was Asher throwing a table tennis ball for her to try hit. I love how Ruth comes up with games. Especially how she gets Asher involved.
RIGHT: This was definitely photo worthy - Hezekiah choosing to colour in. And he spent ages on it too. I was really impressed. Nothing like a super hero book to encourage a boy to colour in. :-)
Asher giving Dad a "rub". Ruth often gives Brendon a massage and Asher has been copying her lately. She says "rub rub". So cute.
Saturday 24th: We had a bit of excitement this afternoon when the Westpac Helicopter suddenly arrived and landed just 300 meters away from us. The road was closed off for a while and then we saw it leaving - very slowly. So we guessed whoever needed them was on their way to hospital and we pray they are safe. What a blessing to have the Helicopter available to get people to hospital so quickly.
Asher had a seizure this evening at 8:15. So far she has only had 2 each week this month, so it's been going really well.
Sunday 25th: Ruth setting up a photo opportunity again. A cute one of these two.
Brendon putting an extra high lock on the back door as Asher can now unlock the dead-bolt. We have to be able to lock doors otherwise she will sneak out and head off so quickly. She can open the garage door too, so could be out on the road in no time. It often feels so strange to have to do this, so it's helpful when you chat to other families who do understand and have to do the same thing. Her safety is the top priority.
BELOW: Anastasia playing with Dad this evening.
After a rather challenging morning on Monday, Asher had a really good morning at school today. Unfortunately she again had a seizure around lunch time (this time at 1pm). It was really short though (just 20 seconds) and again she stayed conscious (similar to the one on the 12th March). So although she was disoriented for 10 minutes afterwards, she didn't need a sleep as she did on Monday.