Sunday, July 16, 2017
Blood, snow and hair
On blood tests her B12 was excessively high but he explained that she was actually low on B12 because her body was just storing it (thus high on blood test) but not absorbing it at all (therefore actually needing more of it).
We also looked at a few dry blood samples (just an example on the right). He could clearly see that she doesn't drink enough water as there were white cracks through the sample (she has not been drinking at all lately). Thankfully she didn't have as much toxins (the black areas) as many children he sees, but she still does have - mainly due to her gut being compromised.
Glen also suggested two products for Asher. She has been jerking so much today that Brendon eventually called the hospital for advice on what to do. They have suggested giving her a double dose of meds at night for 3 nights and then re-evaluate (possibly then needing to give a double dose in the morning as well). I'm really hoping these products can help, as it's always so hard putting extra toxic medication into her little body.
Tuesday 11th: Hannah enjoying holding one of the chooks for a bit today.
Then "She will be coming round the mountain when she comes". This verse was "she will be wearing pink pyjamas".
The last item was "This old man" where Hannah was the man and Hezekiah was the dog that kept getting a bone.
Thanks Ruth for creating such a fun afternoon for them as they practiced. We enjoyed the show too.
Wednesday 12th: Rachel had a day out with the St John competition teams in town today. There had been a lot of talk of all the snow that was coming, but it wasn't as much as we hoped.
We spotted a higher mountain behind Frog Rock which looked loved solidly covered in snow. The mountains around our home were completely white like this, but as it was still very overcast we could get any photos of them.
Just a few km down the road towards the mountains there was a lot of snow, but we just missed it this time.
The chooks had come up onto the deck on Tuesday a few times, so we decided to move their cage up here so that they could have more protection from the cold.
So when I look at this it just amazes me. Well done Hezekiah.
Ruth put a lot of effort into her one too. She would love to win one of the mini iPad prizes - so she always puts a lot of effort in. And it shows. Beautifully done Ruth.
Friday 14th: Ruth built a massive "fort" in Hezekiah's room today. Without the snow to play in outside, it was just cold. So it was nice that they had some good ideas for inside play. Thank you again Ruth for getting something started for them.
After 3 nights of extra meds Asher's jerking was still continuing. We decided to just give it a day or two before considering the extra morning dose (as we notice negative effects if she has double dose during the day). So we went back to normal dose on Thursday and were so very thankful when there was huge improvement on Friday.
Saturday 15th: Rachel had St John competition training today, so Brendon and Hannah used the pick up as an opportunity to have an outing at the Amberley park.
In the evening Ruth got Asher and Hezekiah doing some "exercises" with her before bed. Asher copied nicely putting her legs up and then her arms.
Sunday 16th: A change of plans for today as Brendon started feeling terribly nauseous through the night. It looks like it may have been a 24 hour tummy bug. As Brendon doesn't easily vomit, it tends to be really hard on him. He spent almost the entire day in bed.
Rachel did Ruth's nails today and Rachel and Ruth also spent time doing Hannah's hair in different styles. I've started just doing 3 braids at a time of Ruth's hair (rather than doing 6 to 8 on the weekend). We can generally get 3 done within an hour. We had 5 sessions this week (managing 5 on one of the days) so we got 17 done this week. Just 113 to go. At 3 per session that's another 37 sessions. I'm hoping to get it done before it gets totally uncomfortable with my big tummy in front of me. In total it will be around 90 hours of work to undo and re-braid it all. I'm glad we are already over half way.