Friday, April 28, 2017
Anzac, apples, sing and dance
Asher had her "normal" morning snack for the first time in a week, and unfortunately got sick after lunch. A similar thing happened last week on Wednesday night. We gave her just 2 teaspoons of her "normal" evening snack, and she got sick in the middle of the night. At the time I wondered if it was perhaps the fresh cream in the snack, but we cancelled the baby sitter for Thursday evening, just in case it was still the tummy bug. She has been absolutely fine since then (and not had any fresh cream). So this was clear for me that it was a reaction to the fresh cream. (Almost exaclty the same amount of time after the fresh cream to being sick.) This is a huge blow for her diet as it was a major source of fat in every meal and snack.
She has now lost almost 1kg in the last week and hasn't got her normal appetite back. It's a real juggle to try and tempt her to eat (anything) but then also try and keep the fat to protein & carb ration right. I have given up trying to limit her protein and just focus on the total of protein and carbs. At this stage protein is more palatable for her - so we go with that.
Tuesday 25th: ANZAC day today and Brendon is working again. The service was in Waikari this year, but Lynda graciously gave the girls a lift to the service. Rachel even got to lay the wreath on behalf of the St John attendees.
Last night Ruth and I made some ANZAC biscuits as a part of her guiding badge. I just used my "Crunchie" recipe from over 20 years ago, as it's almost identical. It was the first time I had made the recipe into biscuits though, and that worked really nicely. Normally I would just push the mixture into a pan and then cut it into squares after baking. I think biscuits are the way to go though - and a perfect ANZAC fit (wheat free as I used rice flour rather than wheat flour - and not officially GF because of the oats).
Ruth made herself an omelette this evening and decided to give Hannah and Hezekiah a taste. So they then asked for their own. :-)
Unfortunately Asher had a seizure at midday. A 7 minute Tonic Clonic. Thankfully she had already asked for food not long after 11, so didn't go to sleep with an empty stomach. She was rather unsettled after the seizure but thankfully did have a good sleep in her bed while we had lunch.
I wasn't too surprised to see a seizure today. Her ketone levels have been nice and high since her tummy bug, only twice dropping just under 4 in the mornings. She has been eating a lot better since Wednesday though, and this morning her ketone level was only 2.4 - so rather low. A good indication to me that the higher ketone levels do seem to be helping with seizure control.