Friday, February 14, 2014
EEG and fun and games
When the cap gets put on it upsets the child as they have to scratch the scalp a bit with some rough gel so that the connections are all good. Then you ideally want the child calm so you can get a good idea of what "normal" brain activity is. Rachel helped to try and distract Asher with the variety of toys they had when the cap was getting put on and the bubbles were a great help too. The dear lady sat blowing bubbles for almost the whole test. I think I would have had a headache from all that blowing.
The results from this EEG will help the doctors to determine what AED (Anti-Epileptic Drugs) would be a good second choice. We know that the first choice has just NOT worked for her.
Tuesday 11th. Hannah enjoying on of the many free iPad applications I have downloaded over the months. This time having a go at playing the accordion. She is growing up so quickly.
Wed 12th. Asher enjoying some books.
Below are some of the photos I took at dinner - trying to get Asher's "piggy" face on camera. She makes me laugh so much with that one.
Below: Brooke gets to watch the play that the others have been working on. Rachel says that Hannah is a really good actress. This play has "The Milkybar Kid" adverts as it's inspiration. Anything with cowboys or cowgirls has been a favourite lately. And Hannah is thrilled because she got a pair of cowboy boots from Sarah on Tuesday.
Rachel and Ruth have said that this ice cream is even better than shop bought ones. :-)
Even though Asher had SO much extra exercise today she struggled again so much with her afternoon nap time. She gets so tired and needs to sleep but is just 'high' from her medication. So she spent an hour and a half playing in her cot. The video monitor is a blessing because I know she is safe and she can just play.
I do get to see what she gets up to though which includes: singing and babbling, playing with her toes, opening the curtain and looking outside, opening the draws next to the cot and unpacking the clothes, eating the side of the cot, swinging the picture on the wall, throwing her toys out the cot and the funniest one - putting her blanket over her head and bouncing (which I tried to get a photo of). She cried a lot before her morning nap, so I was thankful that she was at least happy this afternoon. I eventually gave up though and she missed her nap. I do pray that it won't be long before we can get her off the current AED with it's side effects. I phoned the hospital this morning about her EEG results and was told it could still take till next Wednesday or Friday to get feedback. That was hard to hear. I just have to keep my focus on one day at a time.